Reflections on Research and Travel

This is an IiHart podcast Guaranteed human. Living with a rare autoimmune condition brings uncertainty, but it can also create community. In season six of Untold Stories, Life with a severe autoimmune coondition, they go beyond MG and CIDP, as host Martine Hackett welcomes stories from other conditions like myositis and IGN into the conversation. Untold Stories is produced by Ruby Studio in partnership with Argenics. Listen to Untold Stories, Life with a severe Autoimmune condition on the iHart Radio app, Apple podcasts, or wherever you get your podcasts Hey everybody, we are getting ready to go on a trip. We're not packed yet, but our brains definitely are because we have a trip to Bajamar on the horizon. and it's kind of all I can think about. I'm so excited about the food. There are amazing restaurants and lounges there that I'm gonna sample everything I possibly can. I'm going to gaze into the water and mostly I am gonna watch the daily fllamingo parade which might be the thing I'm most excited about. There's also an incredible spa and I know Tracy's going to be takaking advantage of that. There is excited and then there is Bahamar excited. Start planning at bahamar. comot Alienwar's Back to schoolchool event is the perfect time to score top gaming gear with incredible features and advanced engineering to go beyond performance Start your Alienware journey with the Alienware fifteen gaming laptop featuring Intel core processors, game, live stream and multitask for hours on end. Pair your incredibly smooth gaming experience with immersive visuals and sound by saving on sleek alienware monitors, headsets and more. This limited time sale awaits you now at alienware dot com slash deals The oldld gaze are back with Silver Linings, their lovable podcast from Iheart's Ruby Studio in partnership with VV Healthcare. Robert, Mick, Bill and Jessse strut back down memory Lane for season two, sharing lessons on life, love, and loss. These are the kind of insights that only come from experience. So tune in to Silver Linings with the oldld Gazayse on the Iheart Radio app casts or wherever you get your podcasts Snoring, gasping for air during sleep, daytime sleepiness. I'm Shquil O'Neill and this shouldn't be anybody's experience. As your doctor about Zbound to zepatyime, The first SZNOi FDA approved prescription medicine from moderate to severe obstructive sleep apnea in adults with obesity TZzbound is a prescription medicine used with a reduced calorie diet and increased physical activity to help adults with moderate to severe obstructive sleep apnea, OSA, and obesity to improve their OSA. Zbound is approved as a two point five, five, seven point five, ten, twelve point five, or fifteen milligram injection. Zbound contains trizepetide and should not be used with other trizepotide containing products or any GLP one receptor agonist medicines It is not known if ZPBound is safe and effective for use in children Don't share needles or pens or reuse needles. Don't take if allergic to it, or if you or someone in your family had Medary thyroid cancer, or if you've had multiple endocrine neoplasia syndrome type two. Tell your doctor if you get a lump or swelling in your neck. Stop step bound and call your doctor if you have severe stomach pain or a serious allergic reaction. Severe side effects may include inflamed pancreas or gallbladder problems Tell your doctor if you experience vision changes before scheduled procedures with anesthesia. If you're nursing, pregnant, planant to be or taking birth control pills, taking Zbound with a sulfonyal urea or insulin may cause low blood sugar side effects include nausea, diarrhea and vomiting, which can cause dehydration and worsen kidney problems. Talk to your doctor. callall one eight hundred five four five five nine sevven nine or visit zbound. liily d. com Welcome to Stuff You Missed in History Class, a production of Hart Radio Hello and happappy Friday, I'm Tracy V. Wilson, and I'm Holly Fry. This week we talked about the Bunker Hill Monument because I had a little field trip. I told you I had a question about the field trip. Please tell me Did you do the steps I did do the steps I walked up all of those steps I walked It was not that bad But I also walked more slowly than anyone else. I several times moved over to let somebody else go past me. And some of the people that were pushing themselves past me. I then got to the top and they were ready to collapse So I did do it, but I did it slowly. And then I spent some time up there taking pictures of the view from the top of it. It was clear but overcast today. so there was a you could see a long way whichich is very nice. There's also just a terrifying grate in the floor. that Iused to step on because I was like, I don't know if that goes all the way to the bottom, but I feel like it does. Yeah. And so I just don't want to mess with that. And then weirdly coming back down was a little bit harder because going up Periodically, there is a number painted on the face of the step, like fifty,. Whatever. You can do your fractions. Yeah. You can know how much farther you have to go. And then on the way down, all you really have is occasionally there's a little narrow slit window and you can look out and try to estimate how high up you still are I just you're coming down and you don't really know how much longer down You need to go. I immediately wondered because When I was in Italy in April, Uh huh. Did you know you can go up on the roof of Stain. Peter's Basilica I did not. You can't. How many steps is that? Well, you could take an elevator up. I think it's like three floors or you could take the elevator, but then From the roof, you can go up into the dough Okay, which is like five hundred and fifteen steps or something around there And I was we were very deby. We were leaning towards you. But then we saw D entry to the stairwell It's not open. it's enclosed and it's very narrow. and I was like yeah I'm going have a panic attack at step one fifty three and you won't be able to get other people past me because I will just collapse and cry because it's literally so narrow like if you and I were passing each other in that like hallway essentially Sairwell. We would have to go Like Both of us would have to put backs against the wall to slide through. And I was like, nope, nope, nope below. Yeah. So this is not quite that narrow You did have to kind of squeeze to get around people, but you did not have to go like face to face or back to back to do it. Yeah. I had a small backpack on because I was kind of out for the day doing walking around stuff and I wanted sunscreen and water and all of that And I felt a little awkward with it trying to people by or on the way down work around people So I do not think you would have enjoyed Also I'm lazy. I would be like h stairs nice Is there somewhere to get a breezy beverage? It felt it was a very warm day that day and it felt cooler inside the monument than it did outside, which I think helped But when I got home which after leaving the monuments, Go to the two Ranger talks that I went to from their to North Station along the harbor walk which nobody who doesn't live in Boston knows what I'm talking about, but it was a long walk. I kind of went by the Charlestown Naple yard to get there And then I got home And I did nothing for the rest of the day. Yeah. I watched a whole lot of television So yeah, I went down there because I I felt like When I read these news reports, I was like, okay The quotes belong there for some reason can't tell what the reason is from any of these articles. And that was across the board. Every article I read. I was like, I don't understand. what this exhibit is these have come from? Yeah. Are they all from one exhibit? Are they from different? parts of the monument, One of the articles was straightforwardly incorrect and said that the quotes were in the museum that's across the street, which That's not where I think there might have been one of them somewhere in there, but like that's it's not really what was being talked about. R. And so I just went down there on a Saturday morning to figure it out couple of interesting things besides my Climb up the tower that came from that little visit is that according to one of the Ranger talks that I heard The Marquita Lafayette when he did the cornerstone He put it in the wrong place And so people came and moved it in the middle of the night so that they would not embarrass him I don't know if that's That sounds almost like, you know, unsubstantiated lore to me, but I don't know. Both of the rangers that did talks while I was there seemed very knowledgeable and to know what they were talking about. and they were both very ready to say Nobody said Don'told don't fire until you see the whites of their eyes. Right. Like they seem to be on board with the debunking of things. So maybe that is definitely something that happened, but I wasn't able to confirm it Also The Rangers were also talking about a lot of the things that are kind of carried through in this exhibit from the lodge about how liberty has meant different things to different people. Yeah between seventeen seventy five and now and how Liberty meant different things to the men who were there likeike could be fighting for very different ideals. Yeah all believing they were fighting for liberty That was great saw a demonstration of firing a musket That was fun So yeah, it was it was a nice a nice morning And then notot only on a Friday afternoon, but also while I was off of work visiting my parents The order came from the judge saying, you got to stop taking down all of this stuff. And I have not thoroughly read the whole order from the judge B There was sort of a list of things that had already been removed. It talked about the presresident's house site, which is covered on the show before There was a section of things that had been flagged for removal but not removed yet, and one of them was these quotes from the Bunker Hill Monument And yeah, I'm sure that there will be an appeal by the federal government. of this, but for now No more things should be removed from signs and whatnot under the restoring truth and insanity to American history. executive order and the Department of the Interior orrers that followed it I did tryry to get in touch with the National Park Service. to ask a couple of questions about like when for sure was this exhibit created? because I thought the answer was twenty twenty three, but I didn't know for sure. I had a couple of other questions that were just like Who wrote these panels? like, All right, Was it somebody at the National Park Service? Was it a third party or whatever? The response I got was Forbidden, you don't have permission to access this resource which was the result I got when I submitted the web form. So Great Great, I don't know There was no phone number. there was only a web for and a mailing address I can only speculate about why the quote about suffrage that spawned the whole investigation into the Bunker Hill monument was not removed Speculation is that it was more optimistic in its framing. because it was sort of like, we don't have suffrage yet, but we're gonna to get it and this monument is still ours. And some of the other quotes that were supposed to be removed were more goal Also before I actually went down there, I had This episode was going to be just about Operation POW and the anti Vietnam war march that happened I don't know if that will happen at some point in the future Because once I actually saw what that exhibit was trying to do, I was like that's a different story now in my head than the Operation POWN So yeah I have lived within five to ten miles of the Bunker Hill mononument twenty fourteen and have seen it out the window Every time I have gone to the airport And now that I live north of Boston every time I go into Boston for some reason. And I had just never been down there until They were ordered to take down some signs Then I was like, I gotta go see what that's all about. There you go So yeah There is no elevator So the top walking to the top is not accessible to people with mobility issues or physical disabilities. but in the lodge down at the bottom There is a big screen that has live camera views of the view from the. So like that's sort of the way of trying to make that accessible when really not possible to put an elevator in there or somehow make it not have almost three hundred steps. Yeah, that's a good solve. Yeah, yeah. and the like the lodge is accessible and the museum is accessible and has elevators also I'm still thinking about Tracy and I had an aside while we were recording Yeah after recording the Everet. quote. Bout Unlike Egyptian Yeah, you would Yeah. these would have plaques to explain what they are. and my off the cuff thing was like, just because you can't read hieroglyphics. Right But also those aren't the same things. Yeah, yeah Yeah, it's well, yeah And when they made the Bunker Hill Monument, they intentionally did not put words on it part of the They didn't want it there was a discussion of putting like all the names on it or something like that. and then were like, okay, we're not putting any words on this I also We read the chunk of the dedication speech from Daniel Webster I I really liked the sentiment of a lot of the speech But the part that saying that it is only religion and morals and knowledge that can make men respectable and happy. Right. That was not something that I personally agreed with Well, it's also that that thing, right? that like People who are not religious can also have morals. Correct. Yes If you have a religion and your religion brings you happiness and you also feel like your morals are informed by your religion and that's important to you, I am not criticizing that at all. Cool. Yeah ye yeah, the idea that it is only religion and morals and knowledge. I was like, I don't like that part. And just snipping that part out felt dishonest and also so much of the rest of what we read tied into what I I feel like the exhibit was trying to do in terms of like, this is not just of monuments to a battle that happened. It is a monument to the ongoing work of trying to have a just Yeah and informed and fair society. likeike I wanted to include all of that. So I'm also sure had we asked him If other religions that weren't the one he practiced were cool He would have been like, oh, no, no, no, no, no, no, no. So Obviously there's some hubris and presumption involved Yeah So anyway, I'm glad I made that trip to the Bunker Hill Monument. I have no idea what I am going to research next for the podcast. I gota figure it out now because I was going to do something that was related to the revolutionary War, but we have had three of those in a row from me now and I now feel that even though it is the two hundred fifteth anniversary, that I feel surrounded by two fifty stuff living in Massachusetts, I feel personally done with that. for now. Living with a rare autoimmune condition can bring a lot of uncertainty, but it can also bring people together in powerful ways. Tune in for seeason six of Untold Stories, Life with a severe autoimmune condition, a Ruby Studio production in partnership with Argenics. This season, host Martine Hackett brings you fresh stories from people living with MG and CIDP and expands the conversation to people living with other rare conditions like myositis and IGAM Through their stories, you'll learn what it's like to participate in clinical trials seeking new treatments, how connection fuels hope, and how people can support one another along the way. Because living with a rare disease isn't about getting through it, it's about moving forward together. Listen to Untold stories, life with a severe autoimmune condition on the IiHart radio app Apple Podcasts or wherever you get your podcasts Yuess who's back in the house The Old Gays returned for season two of Silver Linings, their hit podcast from IHart's Ruby Studio in partnership with Viv Healthcare. Just wait until you hear what hosts Robert, McBill and Jessse have in store this time around. They stret back down memory lane, navigating life loveove, loss, and everything that shaped them along the way. And as usual, someone just might break into song. From leather bars to bathhouses, dance floors to drag brunch, nothing stays off limits. These are the kinds of insights that can only come from experience. So listen to your elders, honey, and discover the silver linings you can take with you All S, zero filter, and decades of perspective from four friends proving that queer joy only gets better with age on the podcast that never gets old. Listen to silver Linings available on the iHart Radio app, Apple Podcasts, or wherever you get your podcasts Alrighty, there is excited and then there is vacation excited. and we are vacation excited right now because we have a trip planned to Bahja Mar in Nassau. To be honest, I'm kind of mentally already checked in and I have a beautiful drink in my hand. What I love about this is that you can do it your way. There are three luxury hotels all in one place The Refined Rosewood, the playlfully hip SLS, or the stylish Grand Hyatt. So no matter what your vibe is, if it's relaxed, if it's glam, if it's kind of somewhere in between, you're covered. And then there is everything else. This is like an embarrassment of options. There are more than forty five restaurants, bars and lounges, incredible chefs, incredible drinks I'm gonna be all over that. There is a lot of great nightlife that you can get into, like the John Baptiste Jazz Club, which I am also very excited about. If you are a family going to visit, there's a fifteen acre water park. and what I am also excited about shark and sea turtle encounters, bring them on and don't even get me started about the daily flamingo perade. If you're into sporty stuff all there. There is a golf course, tennis, pickleball, anything you can think of. Tracy's going to spend a lot of time at the spa and we are going to spend a lot of time enjoying ourselves. There's excited and then there is Bahaar vacation exxcited. Start planning your perfect getaway at bahamar. com You're considering getting a home security system, but you want something that fits your space. Well, with ADT Blue, it's easy to customize a system that's right for you and set it up yourself. Just pick the kit and monitoring plan that makes sense for your home. Let's say you're worried about package theft. The ADT plus app can walk you through setting up a new doorbell camera kit. Once it's installed, ADT Pros can help you keep tabs on it twenty four seven. orr you can manage it yourself from the ADT pllus app There are no long term contracts so you can change your monitoring plan whenever you want. The flexibility doesn't end there. You can add to your system as you need to with things like extra cameras or motion sensors. Some life decisions are hard, but thanks to ADT Blue, you can DIY trusted ADT home security in a snap to ADt. com slash Blu to build your system today. And to find out more about home prrotection, check out a new episode of Grown Up Stuff with security expert Joe Maza out now on the iHart Radio app, Apple podcasts, or wherever you get your podcasts Iignnoring, gasping for air during sleep, daytime sleepiness. I'm Shquil O'Neill and this shouldn't be anybody's experience. As your doctor about Zet bound to zepatye, the first NNOi FDA approved prescription medicine from moderate to severe obstructive sleep apnea in adults with obesity TZzbound is a prescription medicine used with a reduced calorie diet and increased physical activity to help adults with moderate to severe obstructive sleep apnea, OSA, and obesity to improve their OSA. Zbound is approved as a two point five, five, seven point five, ten, twelve point five, or fifteen milligram injection. Zbound contains trizepetide and should not be used with other trizepotide containing products or any GLP one receptor agonist medicines It is not known if ZPBound is safe and effective for use in children Don't share needles or pens or reuse needles. Don't take if allergic to it, or if you or someone in your family had Medary thyroid cancer, or if you've had multiple endocrine neoplasia syndrome type two. Tell your doctor if you get a lump or swelling in your neck. Stop step bound and call your doctor if you have severe stomach pain or a serious allergic reaction. Severe side effects may include inflamed pancreas or gallbladder problems Tell your doctor if you experience vision changes before scheduled procedures with anesthesia. If you're nursing, pregnant, plan to be or taking birth control pills, taking Zbound with a sulfonal urea or insulin may cause low blood sugar Side effects include nausea, diarrhea and vomiting, which can cause dehydration and worsen kidney problems Talk to your doctor. callall one eight hundred five four five five nine seven nine or visit zbound. liily. comot Last wee on the show, we talked about Elizabeth Blackwell, a different Elizabeth Blackwell than we have already covered on the show Yeah So As I said briefly at the start of the show, I heard about this person at the Ashmolean Museum at an exhibition about plants That was in Oxford I had made a little plan to go to Oxford from where we were staying, which was Birmingham on the train. And then I realized that the takes an hour direct trip on the train that existed during the week did not in fact exist on the weekend. U. And I then dithered a lot about whether I was actually going to go to Oxford because the The connecting train added just enough travel time that it was like, is this going to feel too cramped for a day trip when I would like to be back in time for dinner since I am here with Patrick and friends who were not going with me to Oxford, right? like to be back in time to have dinner with them And I finally decided that if I woke up early enough that I could take the earlier train not feel cramped that I would go And that is what happened. I woke up incredibly early. Terrific And then I walked out of the hotel without my hat. And I am a person who really likes to have a hat on in the hot, bright sunny weather It had gotten a little cooler by that point, but I have delicate fair skin. so I want to have a hat on And I had just left the hat behind because the room was dark when I left and I didn't want to wake Patrick up turning on the lights and I didn't realize that it wasn't in my bag. So The first place that I went in Oxford was the Ashmollian Museum and this flower exhibition And I felt it was a huge missed opportunity in the gift shop to not have floppy garden hats because I would have paid any number of dollars at that point for a floppy garden hat Aside from the lack of floppy garden hats in in the gift shop, it was a really lovely and interesting exhibit. It talked about sort of how our understanding of plants has evolved over the centuries is different art about plants How Like how the effort to collect and study plants has had environmental effects, how it's connected to colonialism Some of the last pieces of the exhibition were works of art by contemporary artists that were really about that. They were about sort of the Environmental toll. that the effort to find and collect and breed plants has had and how in a lot of cases like The efforts for Europeans or North Americans or whoever to get decorative plants for their gardens has robbed the indigenous people who originally cultivate and raise those plants So it wass all very interesting. And that was the first of, I think, five or six museums that I went to and one day. I made a route for myself ahead of time so that I would go in a loop and not go way out of my way like I did in Stratford upon Avine and miss things because I was on the wrong side of town Do you F I'm trying to figure out how to concoct this question because For me That is too many museums because I'm like, ye, I gott to linger Yeah Like how do you bake in your linger time S 'ause I got to stand there and cry in front of art. That takes time, right So A couple of the museums that I went to were on the smaller side of museums One of them was the Bodyan Library's Westteron library, which is the only place that's open to vit I think the only one of their libraries that's open to visitors without tour or an appointment or whatever. And I had not planned far enough ahead to do that. And so that is just two exhibitions on the first floor, not a whole full size museum I went to the History of Science Museum, which is also on the smaller side of museums And then in the Ashmoley Museum, which I think was probably the biggest of the museums that I went to on that day Al also just been to the British Museum I had been to other museums that have a lot of very similar things in their collections. And so I really prioritized the galleries that were not things that I had just seen of that same era, that same location, whatever in a different museum, somewhere in England a couple of days before. Got Did you say hi to the ghost of Mike at the British Museum? I did not. I also didn't see There were things that I would have gone to at the British Museum Had I been planning ahead? The British Museum is also where I really hit a wall in terms of how tired I was, how hungry I was and how hot I was And I was like, I need to sit down and eat food. Did you go to the cQ cafe at the top U It was full, gotcha. So we wound up down at the bottom The Story Museum in Oxford was a beautiful surprise I had planned to go to three different museums that had things from the Pullman's His Dark Materials and the HBO adaptation. It turned out that one of the museums no longer had those things on exhibit, but one of the places that did was the story Museum And I was afraid when I went there that I might feel like a weirdo being at a children's museum without any children I because some children's museums, I feel, are great for adults But some of them are geared in such a way that like Everything is too small for an adult to look at. Does that make sense? Yeah. I don't know I'm short. Maybe it doesn't work. Yeah. to a lot of children's museums and science museums that are like intended for children, but sometimes it is like geared so much for almost a preschool level of engagement that I feel a little like I'm a lot out of place as an adult. Gotcha, Gotcha. But this museum had interconnected through all of the exhibits, things that really were